WHEN • FRIDAY, OCTOBER 14, 2022 • REGISTRATION AT 7:30am • SHOTGUN START AT 9:00am WHERE ST. PETERS GOLF CLUB • 200 SALT LICK RD. • ST. PETERS, MO 63376… Continue reading 2022 Golf Tournament Registration
LLF Updates
Research Progress Update
RESEARCH UPDATE "To know how to wait is the GREAT SECRET of SUCCESS" - Joseph De MaistreIn In February 2018, we initially received Landon’s whole exome genetic sequencing test results.… Continue reading Research Progress Update
Our CAMSAP1 Families
Meet Landon "Hello everybody, my name is Landon! In 2018, my family found out that both copies of my CAMSAP1 gene were mutated. I love being with my family and… Continue reading Our CAMSAP1 Families
CAMSAP1 RESEARCH UPDATE!
🎉 Pardon the long post ahead, but we have a very exciting CAMSAP1 research update regarding advancements made studying Landon’s mutation on the CAMSAP1 gene 🎉
Rare Disease Day: Great News + Awareness
The presentation above was delivered and recorded at the Arya Foundation's 2020 Disability Awareness Convention on 02/23/2020. Complex topics like genetics are difficult to simplify. It is even more difficult… Continue reading Rare Disease Day: Great News + Awareness
