RESEARCH UPDATE "To know how to wait is the GREAT SECRET of SUCCESS" - Joseph De MaistreIn In February 2018, we initially received Landon’s whole exome genetic sequencing test results.… Continue reading Research Progress Update
LLF Updates
CAMSAP1 RESEARCH UPDATE!
🎉 Pardon the long post ahead, but we have a very exciting CAMSAP1 research update regarding advancements made studying Landon’s mutation on the CAMSAP1 gene 🎉
Rare Disease Day: Great News + Awareness
The presentation above was delivered and recorded at the Arya Foundation's 2020 Disability Awareness Convention on 02/23/2020. Complex topics like genetics are difficult to simplify. It is even more difficult… Continue reading Rare Disease Day: Great News + Awareness
Landon’s League Foundation Partners With Dierbergs Markets To Support The Community
In the spirit of giving this holiday season, Landon's League Foundation has proudly partnered with local grocer, Dierbergs Markets, by donating a Firefly "GoTo Shop" [adaptive shopping cart]. The unique… Continue reading Landon’s League Foundation Partners With Dierbergs Markets To Support The Community
Landon Meets St. Louis Blues Players at Ranken Jordan
It was great to see @blais_19, Robert Bortuzzo, and @vince_dunn after therapy @RankenJordan today! We appreciate you taking time to visit Landon, children like him and their families as you… Continue reading Landon Meets St. Louis Blues Players at Ranken Jordan
