RESEARCH UPDATE "To know how to wait is the GREAT SECRET of SUCCESS" - Joseph De MaistreIn In February 2018, we initially received Landon’s whole exome genetic sequencing test results.… Continue reading Research Progress Update
Category: Research Updates
CAMSAP1 RESEARCH UPDATE!
🎉 Pardon the long post ahead, but we have a very exciting CAMSAP1 research update regarding advancements made studying Landon’s mutation on the CAMSAP1 gene 🎉
Rare Disease Day: Great News + Awareness
The presentation above was delivered and recorded at the Arya Foundation's 2020 Disability Awareness Convention on 02/23/2020. Complex topics like genetics are difficult to simplify. It is even more difficult… Continue reading Rare Disease Day: Great News + Awareness
Two Minutes in the Sin Bin – Sports Media Gives Their Hot Take
A special thank you for the shoutout Chris Hrabe (@chrabe)! Check out the audio clip from the November 1st Sports Open Line show on KMOX below: The comparison of Landon's… Continue reading Two Minutes in the Sin Bin – Sports Media Gives Their Hot Take
BIG, Big Gene Update…
Imagine going to your practitioner and having lab tests ordered. You receive the results, but you AND the ordering practitioner have no idea what the results mean. Imagine what it… Continue reading BIG, Big Gene Update…
