Meet Landon "Hello everybody, my name is Landon! In 2018, my family found out that both copies of my CAMSAP1 gene were mutated. I love being with my family and… Continue reading Our CAMSAP1 Families
Category: Research Updates
Research Progress Update
RESEARCH UPDATE "To know how to wait is the GREAT SECRET of SUCCESS" - Joseph De MaistreIn In February 2018, we initially received Landon’s whole exome genetic sequencing test results.… Continue reading Research Progress Update
CAMSAP1 RESEARCH UPDATE!
🎉 Pardon the long post ahead, but we have a very exciting CAMSAP1 research update regarding advancements made studying Landon’s mutation on the CAMSAP1 gene 🎉
Rare Disease Day: Great News + Awareness
The presentation above was delivered and recorded at the Arya Foundation's 2020 Disability Awareness Convention on 02/23/2020. Complex topics like genetics are difficult to simplify. It is even more difficult… Continue reading Rare Disease Day: Great News + Awareness
Two Minutes in the Sin Bin – Sports Media Gives Their Hot Take
A special thank you for the shoutout Chris Hrabe (@chrabe)! Check out the audio clip from the November 1st Sports Open Line show on KMOX below: The comparison of Landon's… Continue reading Two Minutes in the Sin Bin – Sports Media Gives Their Hot Take
