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Our mission is to support the development of gene therapies for rare pediatric genetic diseases and help those affected by granting adaptive equipment to help them and their families with activities of daily living.

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HAPPY 4TH BIRTHDAY TO OUR SWEET BOY!! . The apple

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Flour eeeverywhere, including my hair. Don’t car

Given the unexpected events that happened this yea

1 sparkling gold candle for each month of SEIZURE

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On to week 2 of virtual learning for this sweet bo

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