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Our mission is to support the development of gene therapies for rare pediatric genetic diseases and help those affected by granting adaptive equipment to help them and their families with activities of daily living.

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The many faces of the sweetest boy who loves fresh

Happy 5th Birthday to our happiest boy, Landon! W

‘Tis the season to be jolly! 🎅🏼 (And cel

It’s #GivingTuesday! Created in 2012, it was ori

It’s right here, Ray. It’s looking at me. [S

To know how to wait is the GREAT SECRET of SUCCESS

⛳️ 24 hours left to sign up! ⛳️ Registrat

12 days left until the first Blues 🏒 preseason

"Billy, the reason the game is called ‘golf’ i

🍎 Hip, Hip, Hooray! It was back to school today

Don’t play golf but interested in supporting our

We finally had cool weather to get out and enjoy a

Because of Landon’s increase in seizures, we wen

14 seizures in 6 days. . I (Landon’s mom) have s

Mark your calendars 📆 for our “Land-On The Gr

Raise your hand if you like 3 day weekends 🙋‍

Happy Independence Day! 🇺🇸 . . . #landonslea

It’s been a day spent appreciating our own super

While the special needs community is no community

After an unintentional, yet much-needed, break fro

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