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– Finding a Cure for Rare Genetic Disease –
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Latest Updates
- Our CAMSAP1 FamiliesMeet Landon “Hello everybody, my name is Landon! In 2018, my family found out that both copies of my CAMSAP1 gene were mutated.… Continue reading Our CAMSAP1 Families
- 2022 Golf Tournament RegistrationWHEN • FRIDAY, OCTOBER 14, 2022 • REGISTRATION AT 7:30am • SHOTGUN START AT 9:00am WHERE ST. PETERS GOLF CLUB • 200 SALT… Continue reading 2022 Golf Tournament Registration
- Research Progress UpdateRESEARCH UPDATE “To know how to wait is the GREAT SECRET of SUCCESS” – Joseph De MaistreIn In February 2018, we initially received… Continue reading Research Progress Update
- CAMSAP1 RESEARCH UPDATE!🎉 Pardon the long post ahead, but we have a very exciting CAMSAP1 research update regarding advancements made studying Landon’s mutation on the CAMSAP1 gene 🎉
- Rare Disease Day: Great News + AwarenessThe presentation above was delivered and recorded at the Arya Foundation’s 2020 Disability Awareness Convention on 02/23/2020. Complex topics like genetics are difficult… Continue reading Rare Disease Day: Great News + Awareness
- Landon’s League Foundation Partners With Dierbergs Markets To Support The CommunityIn the spirit of giving this holiday season, Landon’s League Foundation has proudly partnered with local grocer, Dierbergs Markets, by donating a Firefly… Continue reading Landon’s League Foundation Partners With Dierbergs Markets To Support The Community
