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– Finding a Cure for Rare Genetic Disease –
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Latest Updates
- Research Progress UpdateRESEARCH UPDATE “To know how to wait is the GREAT SECRET of SUCCESS” – Joseph De MaistreIn In February 2018, we initially received… Continue reading Research Progress Update
- CAMSAP1 RESEARCH UPDATE!🎉 Pardon the long post ahead, but we have a very exciting CAMSAP1 research update regarding advancements made studying Landon’s mutation on the CAMSAP1 gene 🎉
- Rare Disease Day: Great News + AwarenessThe presentation above was delivered and recorded at the Arya Foundation’s 2020 Disability Awareness Convention on 02/23/2020. Complex topics like genetics are difficult… Continue reading Rare Disease Day: Great News + Awareness
- Landon’s League Foundation Partners With Dierbergs Markets To Support The CommunityIn the spirit of giving this holiday season, Landon’s League Foundation has proudly partnered with local grocer, Dierbergs Markets, by donating a Firefly… Continue reading Landon’s League Foundation Partners With Dierbergs Markets To Support The Community
- Landon Meets St. Louis Blues Players at Ranken JordanIt was great to see @blais_19, Robert Bortuzzo, and @vince_dunn after therapy @RankenJordan today! We appreciate you taking time to visit Landon, children… Continue reading Landon Meets St. Louis Blues Players at Ranken Jordan
- #GivingTuesday Fundraiser for Landon’s League Foundation#GivingTuesday, is a global celebration of charity and philanthropy. We ask that you consider our cause worthy of your generosity through a tax-deductible… Continue reading #GivingTuesday Fundraiser for Landon’s League Foundation
