WHEN Friday, June 5, 2026 โข REGISTRATION AT 7:30am โข SHOTGUN START AT 9:00am WHERE The Quarry at Crystal Springs Golf Club โข 1 Crystal Springs Quarry Dr. โข Maryland… Continue reading 2026 Golf Tournament
Author: Joe Walsh
Drug Therapy Trial Breakthrough
Monday, June 3, 2024, was an EXCITING day for Landonโs League Foundation and our research cohort as we received/discussed the results of our FIRST drug therapy trial! For this part,… Continue reading Drug Therapy Trial Breakthrough
Show Me St. Louis features Landon’s League Foundation
Father discovers new disease gene, sets out on a cure for his son - The story behind Landonโs League Foundation Author: Mary Caltrider Published: 11:25 AM CDT May 22, 2023… Continue reading Show Me St. Louis features Landon’s League Foundation
CAMSAP1: Officially a Disease Gene!
๐๐ก๐ ๐๐ฆ๐๐ซ๐ข๐๐๐ง ๐๐จ๐ฎ๐ซ๐ง๐๐ฅ ๐จ๐ ๐๐ฎ๐ฆ๐๐ง ๐๐๐ง๐๐ญ๐ข๐๐ฌ ๐๐๐๐จ๐ ๐ง๐ข๐ณ๐๐ฌ ๐๐๐๐๐๐๐ (๐๐ง๐ ๐๐๐ง๐๐จ๐งโ๐ฌ ๐๐๐๐ ๐ฎ๐ ๐ ๐จ๐ฎ๐ง๐๐๐ญ๐ข๐จ๐ง!) "There is nothing you can do about it. We'll revisit this in 2 years. Try to have a good rest of your day." - phone call from genetic… Continue reading CAMSAP1: Officially a Disease Gene!
Our CAMSAP1 Families
Meet Landon "Hello everybody, my name is Landon! In 2018, my family found out that both copies of my CAMSAP1 gene were mutated. I love being with my family and… Continue reading Our CAMSAP1 Families