Skip to content
Landon's League Foundation

Landon's League Foundation

Finding A Cure For CAMSAP1

  • Facebook
  • Instagram
  • Twitter
  • LinkedIn
  • Landon’s Story
  • Updates
    • LLF Updates
    • Newsletter
  • Research
    • Research Updates
    • CAMSAP1 Published Research
  • Events
  • Our CAMSAP1 Families
  • Donate
    • Monthly Donor Program
    • Sponsorship Program
  • Contact Us

Category: Research Updates

Research Updates

Rare Disease Day: Great News + Awareness

February 29, 2020March 1, 2020 Joe Walsh

The presentation above was delivered and recorded at the Arya Foundation's 2020 Disability Awareness Convention on 02/23/2020. Complex topics like genetics are difficult to simplify. It is even more difficult… Continue reading Rare Disease Day: Great News + Awareness

Like this:

Like Loadingโ€ฆ
Leave a comment
Research Updates

Two Minutes in the Sin Bin – Sports Media Gives Their Hot Take

November 3, 2019November 3, 2019 Joe Walsh

A special thank you for the shoutout Chris Hrabe (@chrabe)! Check out the audio clip from the November 1st Sports Open Line show on KMOX below: The comparison of Landon's… Continue reading Two Minutes in the Sin Bin – Sports Media Gives Their Hot Take

1 Comment
Research Updates

BIG, Big Gene Update…

October 30, 2019January 1, 2020 Joe Walsh

Imagine going to your practitioner and having lab tests ordered. You receive the results, but you AND the ordering practitioner have no idea what the results mean. Imagine what it… Continue reading BIG, Big Gene Update…

Tagged #camsap1, #charity, #findacure, #genetherapy, #landonsleaguefoundation, #nonprofit, #rare, #specialneeds2 Comments
Research Updates

Dine 2 Donate – Sat., Nov. 2nd, Granite City Brewing Company Welcomes Landon’s League Foundation

October 6, 2019 Joe Walsh

Leave a comment
Research Updates

CAMSAP1 Research Update

September 29, 2019October 1, 2019 Joe Walsh

As previously reported, we have discovered that a portion of CAMSAP1 must exist for any organism to survive embryogenesis. This proposition is simply due to the results of the initial… Continue reading CAMSAP1 Research Update

Leave a comment

Posts navigation

Older posts
Newer posts

Mission Statement

Our mission is to support the development of gene therapies for rare pediatric genetic diseases and help those affected by granting adaptive equipment to help them and their families with activities of daily living.

Subscribe to Blog via Email

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 1,202 other subscribers

Translate

Upcoming Events

No upcoming events

- Instagram -

View this profile on Instagram

Landonโ€™s League Foundation (@landons_league) โ€ข Instagram photos and videos

Facebook

Facebook

Twitter

My Tweets
  • Facebook
  • Instagram
  • Twitter
  • LinkedIn

Loading Comments...

    %d